Ariel's Two Cents

 I guess it's time for another update about my autoimmune life.  I've had another medical emergency this past week.  Tuesday night, I took my first dose of Carbamazepine for my Bipolar mood swings .  I had an appointment scheduled with the prescribing doctor the next morning, Wednesday.  Well, when I woke up Wednesday morning, I had a rash starting on my chest.  When I met with the doctor, we decided to stop the medication, which I had already decided that without his input as soon as I saw the rash starting.  We decided to just get back to a more natural state for now and will discuss adding a new medication on our next appointment.  He told me what allergic reactions to look for and a sore throat was one of the things that he mentioned.  I woke up Thursday morning with a sore throat and the rash was much, much worse than the night before.   After doing a bit of research, I decided that it would be best if I went to Urgent Care ag...

 I saw my neurologist last month and she finally changed my medication.  I was on Emgality for migraines, but it just was not effective, so she prescribed me Ajovy.  I picked it up last week and did my first injection Saturday evening.  It went fine.  It was actually easier than Emgality and it did not hurt at all, whereas Emgality would burn and sting so bad that I would cry.  I stayed on that medication for a year before the doctor finally listened to me and changed it.  I thought this medication would be a good one, but I was terribly wrong. A few hours after I woke up this morning, my bottom lip started to swell, but only on the left side, which I thought was strange.  I made some phone calls to my medical team and the pharmacy that just filled the Ajovy for me.  All medical personnel directed me to seek immediate medical attention.  The main suspicion was that it's an allergic reaction to Ajovy, although it is strange that it took 4...

 I'm not having the best day, so I think a venting session is in order.  Nobody pissed me off this time, besides my pain levels.  I woke up this morning with a lot of joint and muscle pain.  I'm assuming that it's another Fibromyalgia flare and I hate those worse than the other types of flares that I get.  A Fibromyalgia flare is difficult for me to ascertain as the pain and other symptoms are exceedingly similar to a Scleroderma flare .  It's difficult to keep them all straight on flare days.  It's a sad existence because when one disease or condition is not flaring, there is always another condition starting a flare.  I never get a day off from my autoimmune life. I didn't go to sleep until late last night and I'm sure that is affecting my pain level.  My pain is always higher on days with less sleep.  My body seems to need at least 8 - 9 hours of sleep to combat my autoimmune diseases, but I rarely get that these days.  I have ...

 I've been on the move for weeks now, but I finally managed to carve out a day for some rest.  It doesn't happen often in my life, but occasionally a day of rest will manifest itself.  I'm grateful when it does happen.  Michael is off work today and for once, we don't have any appointments to attend to.  Normally, we would have my therapy appointment this afternoon, but Lori is out of the country for the next 5 weeks, so I am kind of on my own for getting through any mental hangups that may arise.  I think Michael is enjoying not taking me to town today.  I know it gets overwhelming for him when he literally never gets a day to rest.  No human body can tolerate that for very long.  Instead, we are spending the day together and catching up on some chores around the house. I slept 9 hours last night and the night before, but my body is still screaming at me.  It frustrates me when I get a lot of hours of sleep, but I still feel fatigued....

 Michael and I spent the better part of last night in the hospital.  He had gone to our primary care physician, Cassandra, and she wanted to send him to the emergency room via ambulance, but he would not allow that.  She did an EKG  at her office, and it showed atrial flutter , which needed medical attention right away.  Michael and I both have extreme medical anxiety, so this was a difficult situation for us.  Luckily, Cassandra understands our issues, so she sent a note to the emergency room so that they would know what to do with us.  I love our doctor.  She is so amazing.  As we were leaving, she gave me a hug and said, "Thank you for listening to my advice."  I hugged her back and told her, "Thank you."  Michael and I ran our errands, then headed to the hospital.  It took some convincing to get Michael to agree to go, but he finally came around to the idea.  He wanted to wait until Monday, but I knew that was not safe...

After last week's change of plans, Lori and I finally found the time to have my first EMDR reprocessing session.  We had to switch to a virtual session last time and I didn't want to do any reprocessing from home, just in case it flipped me out.  Lori didn't want to have a virtual session for EMDR, either, so there was no disagreement there.  Of course, there is never disagreement between Lori and me.  I trust her implicitly and for good reason. My reprocessing appointment was on Monday, and today is Wednesday.  When you have a reprocessing session, it "opens you up" and your brain continues to reprocess the trauma for the next 48 hours.  I have known this for quite some time as Lori has educated me about the process of EMDR, at least as much as she can without doing the actual therapy.  Most of it is easier to understand when you are going through it rather than when you are just learning about it.  Lori knows that I get anxiety quite easily, so ...