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Showing posts with the label ssSSc

Yearly Scleroderma Testing: ECHOCARDIOGRAM

 When you have a disease or condition like Scleroderma , you must keep up on yearly testing.  There are several different tests that are required for proper monitoring of the disease.  Yesterday, I completed my yearly echocardiogram at Pulse Heart Institute in Spokane, Washington.  Well, this test is supposed  to be done on a yearly basis, but I have extreme medical anxiety, so I waited four years to get it done after the first one.  Testing is difficult for me for many different reasons, the main one being I absolutely hate to be touched by anyone, for any purpose.   The echocardiogram was scheduled for 4 pm, after my therapy appointment.  I had two hours in between appointments, but I didn't have much to do, so we went and had a Frappuccino before we went to my echocardiogram appointment.  I used our coffee date as a time to prepare myself mentally for what I had to put myself through.  Any test that requires me to remove my clo...

Making Sense of the Chaos: An Autoimmune Update Post

 It's time for an autoimmune update post!  I saw my primary care doctor, Cassandra, yesterday afternoon.  I had to update her on so many different things that I nearly forgot half of it.  Thankfully, Michael was at the appointment with me, so he was able to make sure the things that I forgot about would be mentioned.  This is why it is critically important for support people to be allowed into these appointments.  Most of us with autoimmune disease also have some form of brain fog at the same time.  It's difficult to live with it and even more difficult to manage your chronic illnesses when you're dealing with brain fog, too. Before Cassandra left for a two-week vacation, she messaged me and told me to behave while she was away.  It was a perfectly normal comment for us as we tend to joke about my health and body always causing issues.  She always jokes with love in her heart, never to be mean, rude or disrespectful.  She knows when it'...