Ariel's Two Cents

 On September 5th, I had a Pulmonary Function Test (PFT) to monitor for any lung involvement with my Scleroderma .  I am supposed to have this testing done at least once a year, but I waited over four years to get it done again.  When I got it done last time, back in 2021, the respiratory therapist was absolutely awful to me.  She was rude and disrespectful and did not have any care or concern for my issues.  I dreaded going back to the same office for this test, but I was pleasantly surprised to find it was a completely different respiratory therapist performing the test this time.   When Nina, the respiratory therapist, came to get us for my test, I started our interchange by advocating for myself, which is exceedingly difficult for me to do, but I persevered, just the same.  I explained to her that I have a lot of anxiety, claustrophobia, mental issues and past medical and sexual trauma.  I further explained that I am not trying to be dif...

 As you know, I have been working on getting all of my yearly Scleroderma tests done and taken care of.  It's not been easy for me to get these done with my extreme medical anxiety.  The most "normal" test will give me days and days of anxiety, even if I know it's going to be a simple and painless procedure.  Poor Michael doesn't know how to calm my anxiety down, so he does nothing at all, which makes it a bit worse.  At least he tries to be there for me.  That's more than some people in my life will do for me. The HRCT scan was scheduled for August 15th.  I had to reschedule it several times over the last month due to my anxiety and scheduling conflicts.  I finally got it done on that date.  It was a day that I had therapy group prior to my scheduled test.  I went to group and hardly said a word the entire time, mainly because my anxiety was through the roof.  I'm good at masking, so most people don't even know to ask me if I'm o...

 It's time for an autoimmune update post!  I saw my primary care doctor, Cassandra, yesterday afternoon.  I had to update her on so many different things that I nearly forgot half of it.  Thankfully, Michael was at the appointment with me, so he was able to make sure the things that I forgot about would be mentioned.  This is why it is critically important for support people to be allowed into these appointments.  Most of us with autoimmune disease also have some form of brain fog at the same time.  It's difficult to live with it and even more difficult to manage your chronic illnesses when you're dealing with brain fog, too. Before Cassandra left for a two-week vacation, she messaged me and told me to behave while she was away.  It was a perfectly normal comment for us as we tend to joke about my health and body always causing issues.  She always jokes with love in her heart, never to be mean, rude or disrespectful.  She knows when it'...