Ariel's Two Cents

 It's time for an update post.  I saw my new rheumatologist today.  My friend from group took me and I was incredibly grateful for her help.  We met in Spokane, then she drove Michael and me to Coe'ur d'Alene, Idaho, to go to my doctor's appointment.  It was a nice drive with beautiful scenery.  Before today, I had never gone to Idaho.  There is currently a wildfire on the mountain out there, so we got to see a bit of that.  Scary stuff, really.  Firefighters were ambushed on that mountain yesterday.  It's made national news.   We found the medical office with no trouble at all, not that I'm surprised.  My friend knows the area better than I do, plus we had the use of technology to guide our way.  I would be so lost with my digital maps on the phone.  I get lost coming out of the bathroom.  Maps are necessary everywhere I go.  We got to the appointment quite a bit early, but I would rather be an hour e...

 I had an awful start to my day, and it has left its mark on me.  I only slept for about 3 - 4 hours before I woke up with a bout of painsomnia, which is one of my most hated symptoms.  Painsomnia steals my sleep, my joy and my peace all in one swoop.  Today's episode was compliments of sleeping on my stomach, which causes severe back pain for me.  When I woke up, I could not feel my hips or parts of my legs.  I could not get up and out of bed to make my coffee, use the restroom, find my pain medication, or anything else that I might have needed at the time.  I did the only logical thing that one can do at 3 am in an emergency and I woke up my husband.  He begrudgingly got up and out of bed to help me.  Neither of us were in a particularly good mood at that ungodly hour, but he still made the coffee, got me my medication, then promptly went back to sleep.   Normally, I would spend the next few hours working on a writing project or s...

 I guess the third time will be the charm because I discovered that I am having a reaction to yet another medication.  It's the strangest situation, I'll tell you.  I wear the Visible armband to help me track my activity levels and how they affect my chronic pain and chronic illnesses.  It works wonders for me and at this point, I have to say that using the device may have saved my life, in a way.  The device works by tracking your heart rate and heart rate zones.  It gives you points for the activities, and the goal is to stay under a certain number of points.  Well, I was not earning any points during any activities because my heart rate was in the 40's and 50's.  I started some medications for the second allergic reaction, and the Famotidine has a rare side effect of Bradycardia and if you know anything about me, you know that I always get the rare side effects and reactions.  I'm just lucky like that.   I had to do some resea...

 I guess it's time for another update about my autoimmune life.  I've had another medical emergency this past week.  Tuesday night, I took my first dose of Carbamazepine for my Bipolar mood swings .  I had an appointment scheduled with the prescribing doctor the next morning, Wednesday.  Well, when I woke up Wednesday morning, I had a rash starting on my chest.  When I met with the doctor, we decided to stop the medication, which I had already decided that without his input as soon as I saw the rash starting.  We decided to just get back to a more natural state for now and will discuss adding a new medication on our next appointment.  He told me what allergic reactions to look for and a sore throat was one of the things that he mentioned.  I woke up Thursday morning with a sore throat and the rash was much, much worse than the night before.   After doing a bit of research, I decided that it would be best if I went to Urgent Care ag...

 I saw my neurologist last month and she finally changed my medication.  I was on Emgality for migraines, but it just was not effective, so she prescribed me Ajovy.  I picked it up last week and did my first injection Saturday evening.  It went fine.  It was actually easier than Emgality and it did not hurt at all, whereas Emgality would burn and sting so bad that I would cry.  I stayed on that medication for a year before the doctor finally listened to me and changed it.  I thought this medication would be a good one, but I was terribly wrong. A few hours after I woke up this morning, my bottom lip started to swell, but only on the left side, which I thought was strange.  I made some phone calls to my medical team and the pharmacy that just filled the Ajovy for me.  All medical personnel directed me to seek immediate medical attention.  The main suspicion was that it's an allergic reaction to Ajovy, although it is strange that it took 4...